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National End of Life Survey

Privacy notice

Thank you for visiting the website of the National Care Experience Programme.

This statement relates to the privacy practices in connection with this website.

General privacy statement

The National Care Experience Programme website collects IP addresses. IP addresses are held to identify any issues with logging on to or using the website and any attempts to breach the security of the website. IP addresses are automatically deleted after one week.

No other potentially personal information is retained by the National Care Experience Programme website.

Survey participation

When survey participants log in to complete a survey via, they are redirected to an external server based in Dublin. This server is controlled by Behaviour & Attitudes who have been contracted by the Health Information and Quality Authority to administer the National Inpatient Experience Survey and the National Maternity Experience Survey.

Survey responses are anonymised upon receipt and held in an anonymised format on this secure server following best practice as set out in ISO 27001.

Information provided to us via email or phone

Information that you provide to us via email or by calling our helpline will be treated in strict confidence and will not be shared with unauthorised third parties.

Emails sent to are received by the survey team based in HIQA and are deleted at the end of each calendar year.

All calls are directed to a specially staffed helpline in Behaviour & Attitudes. Once a survey cycle is over, calls will be directed to the survey team. Calls are not recorded.

Sign up for results

We use a third-party provider, Postmark, to deliver our emails. We gather statistics on email opening and clicks using industry-standard technologies, including web beacons, to help us monitor and improve the service.

How we collect and use technical information

Certain technical information is collected via our internet service provider. This information does not contain any personal information. This information helps us to assess how many visitors use the National Care Experience Programme website and how they use our site, to ensure that we provide the most helpful information in the most helpful structure.

We want our online services to be easy, useful and reliable. This sometimes involves placing small text files (known as cookies) on your internet devices. Cookies cannot be used to identify you personally. For more information about cookies, visit our Cookie policy page.

The National Care Experience Programme is not responsible for the content or privacy practices of other websites for which we have provided external links.

Review and updates to this privacy policy

We will review and update this privacy statement as the need arises.

Further information on data handling practices

For more information on how the National Care Experience Programme collects and uses information please visit the information governance page on this website.